SO FAR TODAY...

my mom 'got' this verse today...so amazing...i think Hagar is AKA sandeep or fluffy-fluffy or shannon

"Then she went and sat down by herself. “I don’t want to watch the boy die,” she said, as she burst into tears. But God heard the boy crying, and the angel of God called to Hagar from heaven, “Hagar, what’s wrong? Do not be afraid! God has heard the boy crying as he lies there. Go to him and comfort him, for I will make a great nation from his descendants.” Gen 21:15-17

so far today parker has been seen by the 4th year resident doctors from neurology and infectious disease. both doctors were really great and thorough. we ended up having family friends in common with the infectious disease doctor - making a personal connection like that right off the bat kinda broke the ice so to speak. we discussed lyme at length and she really listened. thank you God.

both residents will be meeting with the the neurology team to discuss the results of their exams and then the residents and 'real' doctors will be all coming back in to do more exams and such. as i type the infectious disease team is meeting (@ 1:30PM) to discuss parker. we have been told that they have brought in the top infectious disease doctor in canada (for children) to consult and evaluate parker's case. apparently, he will be coming in to evaluate parker after their meeting. not sure how we feel about that - it's either a good thing or bad thing. just having to trust. i asked the ID resident we saw to please give this doctor DR Hs contact info and am really hoping that they will consult with him. we were told they will definately be coming up with a plan to treat his mycoplasmo infection. the doctor said that it can manifest as the symptoms that parker is having HOWEVER not this severe.

currently parker is having one of his 'better days' - he has had no tremors today and his pain levels are at about a 3. this is not because he is on any pain meds - we haven't even been seen by pain management yet. that is frustrating - his lowered levels are just a part of the waxing and waning nature of his symptoms. we are happy to see him feeling a little bit better however it presents a bit of a quandry as it would be best if he was super bad flaring (as he has been especially over the past 3 weeks) sooooo...what do we do pray for him to have a really bad flare so it is witnessed by the docs? that's terrible to hope for that. yikes.

maybe we pray that whether his symptoms are flaring or not, that doctors are able to diagnose him.

more to come...

we are incredibly grateful for the support and prayers. thank you for your messages and continued willingness to hold us up in prayer and walk alongside us through this journey. your support is an immeasurable comfort to us all.