October 22, 2008

WHO AM I?

Who am I?
I am not Graham.

It's me again.
Who's me again?
Me again...as in Shannon...minus one angry, rebellious organ.

WOW.
The past 5 weeks have been some of the most harrowing, horrifying, emotionally numbing weeks to date...capping them off with the drama of an emergency surgery was somewhat a nice distraction.

Weirdly enough.

More about that later. I have so much to get down on cyber paper. I have desperately missed spewing forth my thoughts - it's been incredibly trying and frustrating to be so hemmed in by my physical and mental limitations. My brain, my crazy lyme mind is alive with colorful verbage swirling around on one continuous dizzying axiom screaming for release in the form of Size 10, ARIAL font.

Not sure if my return is indication that I am actually coming out of this 5 week long herx or if it is because I have now been off my detox meds since last Thursday or if it has more to do with the fact that I'm pumped full of morphine and various other lovely narcotics.

Somehow I have a sneaking suspicion my reprieve has more to do with the latter.

However, time will tell.

I was telling my mom that I actually feel the best I have felt in 7 weeks.
I thought that was so strange.
She looked at me like I had seriously lost my mind and then said, "Well, of course you do, you are pumped full of morphine."
Oh yeah. That fact seemed to have slipped my mind.
Had a good laugh about that.

However, I guess its a fairly stark reality of just how really bad it has been if I feel that way after undergoing emergency surgery just 4 days ago.

Yesterday, I had an appointment with my surgeon to remove my stitches. It was the first time in 5 weeks that I wore clothes and not pajamas. I even brushed my hair and put on make up - haven't been able to do that since we were in California.


Pretty crazy reality to face the fact that even though I was just 3 days post surgery, I was actually the most functional I have been in 5 weeks. Of course, the fact that I also had the nerve to ask my surgeon when I could put my belly button piercing back in, citing that "I don't 'recognize' my stomach without it." is probably an indication that I am still somewhat a little loopy from narcotics. I even made it to our 20 min. Parent-Teacher conference with Parker's teacher. However, given my narcoticly influenced head space, I figured it would be wise if I stayed uncharacteristically quiet.


And oh yeah, speaking of surgery....
That was done on Saturday.

It was a Laproscopic Gall bladder surgery.
Which basically means that they just suck it out through 4 little incisions.



Hoover away, Doc, Hoover away.
Feel free to suck out as many borrelia spirochetes as possible while you are at it.

In all I spent 4 days in hospital.
And boy do I have stories to tell.
The whole experience was one crazy ride that bounced non-stop between insanely boring and incredibly dramatic.

My lyme symptoms certainly gave the hospital a run for their money. Literally.

It was all rather terrifying...and definately a curious, new phenomena to experience. Generally my lyme symptoms go into hiding in the presence of medical personnel, so while it was scary to deal with my crazy symptoms ON TOP of dealing with surgery, it was also a strangely exhilirating, liberating experience.

More about it all later.
Right now, I'm fighting to stay awake.

But most importantly, before I head off into La La Land, I just wanted to say an immensely HUGE THANK YOU to all of you who have supported, encouraged and prayed for us...especially over the past 5 weeks. Graham always relayed your messages to me and I cannot even begin to express what that meant to me. This is an incredibly lonely and isolating disease to fight - I take great comfort in knowing and being reminded through emails and phone calls that I am not alone.

Indeed, I know that I have been the recipient of an amazing and overwhelming outpouring of love and prayer. In fact, I so strongly experienced such an absolute supernatural peace as I was wheeled into the OR, that it is beyond doubt that my peace in that scary moment can only be attributed to the power of prayer.

WHO AM I....that I should be the recipient of such an overwhelming outpouring of love, support and prayer?

WHO AM I...that strangers should choose to send me their love?

WHO AM I...that folks make time in the busyness of their own lives to clean my house, take & pick up my kids from school, nurture my kids by including them in their family experiences and outings, prepare meals for our family, drive me to dr appointments, the list goes on and on...

WHO AM I....that folks have the tenacity and strength to tirelessly and faithfully uphold me in prayer as this battle endlessly and wearily wages on and on and on?

WHO AM I...that folks who carry their own tremendous burdens and pain should choose to come along side of me and share the weight of my burden?

I am moved to tears.
I am humbled.
I am grateful.
I am profoundly blessed.
I am Shannon.
And I am back.



October 17, 2008

Saying Goodbye to an Organ

It's Graham again.

Took Shannon to the hospital last night because of ridiculous gall bladder pain. Poor thing could hardly walk straight. Morphine took the edge off, but the long and short of it is, that it must come out.

We were hoping that her GB would calm down and we could avoid surgery - she's been so weak lately, surgery is not the best thing for her. However, we're trusting that the Lord our God will direct the hands of the surgeons.

I'll be in touch.

Please pray!

October 7, 2008

The Great Planetary Infection

We're poking our heads out of the hellish world of Lyme into cyberspace in order to reach you and let you all know what's going on.

Many of you are commenting on the absence of recent posts, so here's a bit of an update. Thanks for your comments, phone calls and emails to us. Please keep doing this!

Clearly, this has been a most difficult 3 weeks for Shannon.

She's been either in bed, or on the couch except for a visit to the doctor on Oct 1. The doctor was seeing patients on a drop-in basis, so I slotted Parker and Avery in the cue with a bag of chips and returned to wait with Shannon in the van. She could barely sit up so we reclined the seat as far as it would go (how does one make a minivan seat comfortable?). When our turn came, I hauled her out of the van and into a wheelchair to get her into the office.

Since my last post and returning from California, nothing has really changed for her. In fact, it's getting worse. I suppose this delicious detox cocktail she's taking is working. Inside her, there seems to be a great stirring of something that is fighting to either stay or leave. Reminds me of when Jesus cast the evil spirits into the herd of pigs. I'm seriously thinking of buckling her into the van and driving down the street to the Automall and casting her toxic demons into a lot of Toyotas.

That being said, it reality is that this whole thing is in the hands of the great Healer. We're all really tired of this, and I'm beginning to get stretched in ways I didn't know possible. But through it all, we're realizing that it's not just all about me - or Shannon, or Lyme. Our entire planet is infected.

We're either part of a really sick joke that God is playing on us all, or part of a master plan so intricately designed and loving upheld by a Master Creator that it is beyond our wildest imagination.

We've chosen to believe in the latter.