we are home!
parker was discharged late this afternoon.
sweet release! yes!
parker has been released and remains in significant pain... and he continues to have episodes where it becomes pretty much unbearable - even the morphine he received in the hospital was not overly effective.
we have left with a comprehensive pain management plan. the doctor explained to us that parker's case is complex (parker's response to that - "gee, it only took them 5 months to figure that out!") and because he is still undiagnosed, this is not a treatment plan but a management plan. this is not a fix nor will it be a quick fix. it will take several weeks of implementing all the components of the plan before he will have any significant relief however, she (and we) are confident that this is a positive step forward. we are relieved and happy about that... and we are very, very, very exhausted. it's been a long 4 days.
as far as the "undiagnosed" part goes well... we are waiting for the results of the lyme antigen/DNA test that is currently being done on samples that were taken from parker in mid january. these tests are being done in a lab in the USA. the results should be back by the end of next week. please pray for this testing and the results.
something about dr big cheese's dismissal of the mycoplasma infection is not intuitively sitting right with me. so whether he does or not, i'll be reading and researching the medical literature on it...and i won't let it go until i'm satisfied and have peace that it's not contributing and/or the cause of parker's symptoms.
but for now, we all just need to decompress and get some sleep.