parker was discharged late this afternoon.
sweet release! yes!
parker has been released and remains in significant pain... and he continues to have episodes where it becomes pretty much unbearable - even the morphine he received in the hospital was not overly effective.
but
we have left with a comprehensive pain management plan. the doctor explained to us that parker's case is complex (parker's response to that - "gee, it only took them 5 months to figure that out!") and because he is still undiagnosed, this is not a treatment plan but a management plan. this is not a fix nor will it be a quick fix. it will take several weeks of implementing all the components of the plan before he will have any significant relief however, she (and we) are confident that this is a positive step forward. we are relieved and happy about that... and we are very, very, very exhausted. it's been a long 4 days.
as far as the "undiagnosed" part goes well... we are waiting for the results of the lyme antigen/DNA test that is currently being done on samples that were taken from parker in mid january. these tests are being done in a lab in the USA. the results should be back by the end of next week. please pray for this testing and the results.
and
something about dr big cheese's dismissal of the mycoplasma infection is not intuitively sitting right with me. so whether he does or not, i'll be reading and researching the medical literature on it...and i won't let it go until i'm satisfied and have peace that it's not contributing and/or the cause of parker's symptoms.
but for now, we all just need to decompress and get some sleep.
6 comments:
sleep sweet dear ones
Dear Shannon This greatly encouraged me this morning" Be strong and courageous! Don't be discouraged because of the king of Assyria or his mighty army, for there is a power greater on our side! He may have a great army, but they are merely men. We have the Lord our God to help us and to fight our battles for us."11Chro 32:7,8 In seemingly impossible situations we need to do our part like you did and PRAY! PRAY! PRAY!and then watch God fight the battle for us.Let's keep praying and watch GOD win this war AND GET ALL THE GLORY Love Betty (ps that whole chapter is great and full of treasures
I am so pleased that Parker is home and that you all can get some rest and comfort in your own home. It's also terrific that he has a pain management plan. Division 5's thoughts are with your family.
Dear Parker,
Keep your chin up lad, I know this is not what you want to have to go through, but if you're stuck with it for now, then try and make the best of it, if you can. This will all pass in God's time, and you will have a brilliant life ahead.
For now, I'd keep nagging about the Wii fit, as that seems a good idea. A good book I recommend is 'The weirdstone of Brisingamen' by Alan Garner, which I read to my son when he was about your age. Or try 'The dark is rising' which is by Susan Cooper, I think.
Good films to rent are 'Wild America' and 'Galaxy Quest'.
Being ill is a good time to plan things and learn new things that we're usually too busy to do. Have a competition with your family and see who can come up with the most USELESS fact. (mine is that Presbyterians is an anagram of Britney Spears).
Your mum's blog is read all over the place - if you collect anything, why not get her readers to send you items from all over the world.
The worst joke in England is "What is brown and sticky?" answer - a stick. What's the worst joke where you live?
This time of being stuck in bed feeling rotten will be over before you know it, so make the most of it.
Take care of yourself, always,
Bev, from England.
I remember when my own little ones were in the hospital, it seemed that we would never get through the stress and struggle. After four long months in the NICU, we finally made it home and it now seems like a distant memory. I pray that this hard time (a total understatement) in your lives is over quickly and that you will be able to look "back" on it soon. We continue to pray for healing for both of you, wisdom and understanding for the doctors and strength for you and your family to endure.
whew... just caught up on your past few entries- what a rollercoaster!
I sure will be praying- for all components of his pain mgmt plan and also for the true problem to be diagnosed. I can't imagine your emotions. I will continue to pray- and my bible study ladies too.
hugs,
chrisB :)
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