September 18, 2009

THOUGHTS FROM THE WALL


WALL OF HOPE
September 17, 2009



"a peaceful, quiet gathering of people held annually across our nation, in acknowledgment of those suffering with Lyme Disease and in remembrance of those who have died in their struggle with this insidious disease."



Vancouver Lyme Support Group's
"Wall of Balloons"

each balloon had the name of someone (in our area) that is living with lyme and was either too sick to attend, or out of country getting treatment or have lost their battle -

graham and i attended the Vancouver Wall of Hope on Sept 17.

it was a good day
it was a difficult day

it was great to be able to connect with some of the "old crew" from our support group. i haven't been able to make it to many meetings over this past year so it was wonderful to catch up with these amazingly courageous folks.
it was wonderful to finally get to meet (and hug) my internet friend "LN"...a friend and fellow lymie whose emails of encouragement have meant so much to me.

furthermore it was hope inspiring to hear that some were not in attendance because they were at WORK.
recovered enough to work
now that is hope-inspiring!

treatment works.
period
it is horrible
it may take years
but
it works
people are regaining quality of life because of prolonged antibiotic therapy.
treatment works.
and sadly
people...MY friends
are losing their lives because of misdiagnosis and lack of treatment.


MY friends
are losing their lives to a disease that is preventable, treatable and curable if caught early.



their stories are my story



their stories are our stories...



and

their stories are why
the fight for better diagnostic testing and access to treatment IN canada is a matter of life and death

TAKE A MOMENT...

to say a prayer for my friend Tracie who lost her sister Leslie on November 2, 2008

Leslie Rae Wermers


remembered always


TAKE A MOMENT

to visit this Lyme Memorial
a website dedicated to honoring those who have lost their battle







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